A had his GI checkup. Not sure what it is about that place that makes him hate getting measured and weighed but every month it’s the same deal. Either way apparently he gained weight even with his elimination diet so for now we don’t need to add the supplemental formula or steroids woohoo!
One more month until they can scope/biopsy again and see what his Eosinophil count is. If it looks good we can try and re introduce new foods every two months, scoping in between to make sure nothing is bothering him. If it looks bad we eliminate something additional from the list of 18 foods his blood work showed he was “allergic” to. #eesucks
I have been prepared by the online community and the one random woman I met whose son has #EoE that quite often you can go months with these diets and instead of lowering, the count goes up significantly. I guess if you take away 8 things you eat a lot more of other things and if one of those is actually the trigger food you make it much much worse. Still I am so hopeful that we can get a clean scope and head towards the year and change of getting back to normal.
A is a trooper, since he already was so picky and are limited foods eating separately is mostly ok. Who would have thought the picky eating from sensory issues and #autism would end up benefitting him but it actually has. The hardest part is when he tried and sneaks food from someone’s plate. 95% of the time the boys eat the same and maybe 60% he whole family does but it still happens. Last month he stuck his pinky in regular ranch and had it on his tongue before I could reach out and stop him. Same day an hour or so later he had a throwing up episode for the first time in a month. How easy it was for me to forget those.
So we go back In a month and will schedule the next EGD then. Please let it go by quickly. #eosinophilicesophagitis #milkfree #nutfree #wheatfree #fishfree #soyfree #kidswithallergies #foodallergies